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Morning Briefing

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Friday, May 26 2017

Full Issue

Viewpoints: Taking Stock Of Genetic Privacy; What About Those Medical Misfits?

A selection of opinions on health care from around the country.

Genetic information is becoming ubiquitous in research and medicine. The cost of genetic analysis continues to fall, and its medical and personal value continues to grow. Anticipating this age of genetic medicine, policymakers passed laws and regulations years ago to protect Americans鈥 privacy and prevent misuse of their health-related information. But a bill moving through the House of Representatives, called the Preserving Employee Wellness Programs Act (H.R. 1313), would preempt key protections. Because the bill, which was sent to the full House by the Education and the Workforce Committee in March, would substantially change legal protections related to the collection and treatment of personal health and genetic information by workplace wellness programs, it should be on the radar screens of physicians, researchers, and the public. (Kathy L. Hudson and Karen Pollitz, 5/24)

People with health insurance tend to think of safety-net hospitals the way airline travelers think of the bus: as a cheaper service they would use only if they had to. But without these essential hospitals 鈥 which specialize in the care of our country鈥檚 most medically and financially vulnerable, particularly the uninsured 鈥 our entire health care system would be in danger. (Ricardo Nuila, 5/26)

America's opioid epidemic is not manufactured hype; it's real. Prescription painkillers are now more widely used than tobacco. Opioids were to blame for 31,000 overdose deaths in 2015, a 300 percent increase from 1999. Of the top ten drugs involved in overdose deaths, half are prescription opioids. (Ross Pomeroy, 5/25)

For serious or life-threatening disease, the Food and Drug Administration (FDA) can approve drugs on the basis of surrogate end points that are 鈥渞easonably likely to predict clinical benefit,鈥 through its accelerated approval review track. This pathway, which dates back to the early 1990s, was designed as a response to the demand for faster drug development in the context of the HIV/AIDS crisis. Since then, the accelerated-approval program has expanded to include oncology products and drugs for other diseases, now accounting for about 10% of new drug approvals. (Walid F. Gellad and Aaron S. Kesselheim, 5/25)

California鈥檚 mentally ill children need clearer laws when going through the juvenile court system...聽While competency laws exist for juveniles suffering from mental illness, there are no clear, prescriptive guidelines for juveniles on the delivery and duration of services like those that exist in the adult system. Because of this gap in the law, these very vulnerable children languish in juvenile halls, unable to receive the mental health treatment they desperately need. (Mark Stone and Laura Garnette, 5/25)

For decades, too many of Greater Cleveland's babies have been dying before their first birthday. In 2015, Cuyahoga County had an overall infant mortality rate of 10.5 deaths per 1,000 live births, nearly double the national rate. (5/25)

Scientific research is a critical national investment, providing strong economic and societal benefits that improve our quality of life. In Northeast Ohio, investments in scientific research and environmental protection have helped spur the growth of our local biotechnology and fuel cell industries, enhance our world-leading hospitals and universities, and revitalize the Cuyahoga River and Lake Erie. Yet the White House's budget proposal seeks to walk away from these investments, threatening our nation's ability to ensure a more prosperous future, healthy people, and a healthy environment. (Anne Jefferson, 5/26)

From flashy tech start-ups in Silicon Valley to modernized insurers in New York, everyone wants to 鈥渄isrupt鈥 health care. In practice, this is immensely more challenging than it sounds. Electronic health records (EHRs), more than a decade ago, were expected to revolutionize how health information is stored and shared. Yet, even today, 36 percent of office-based EHRs don鈥檛 permit secure messaging between patients and physicians, and 37 percent do not even allow patients to view their records. (Paul Howard, Yevgeniy Feyman and Amy Shefrin, 5/25)

For millennia the heart was thought to be the seat of emotions 鈥 the source of love, of course, but also kindness and courage. To lose heart is to lose the fight, and perhaps even one鈥檚 life. In a literal sense, a weak heart means death. Unfortunately, sudden cardiac arrest is the leading natural cause of death in the United States. (Kamal Patel, 5/25)

This is part of the Morning Briefing, a summary of health policy coverage from major news organizations. Sign up for an email subscription.
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