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Friday, Feb 26 2016

Full Issue

Obama: Precision Medicine Initiative Laying Groundwork For Future Breakthroughs

The president, while speaking Thursday at his precision medicine summit, also delved into the tricky question of who owns a patient's genetic data.

President Obama had one major challenge at his precision medicine summit on Thursday: avoid getting bogged down in jargon. Instead he kept his eyes on the horizon, focusing on the benefits he envisions 10 years from now if precision medicine moves forward: better, more effective medical treatments tailored to individuals, and eventually lower costs because there will be less spending on treatments that don鈥檛 work. (Nather, 2/25)

President Obama on Thursday waded into the complex and high-stakes debate over whether patients own their genetic information, saying that he believes that his tissues and any discoveries that stem from his DNA belong to him. 鈥淚 would like to think that if somebody does a test on me or my genes, that that鈥檚 mine, but that鈥檚 not always how we define these issues,鈥 Mr. Obama said during a White House forum on a major biomedical research initiative he began last year. The president said that the success of his Precision Medicine Initiative, which aims to collect genetic data on one million American volunteers so scientists can develop drugs and treatments tailored to individual patients, hinged at least in part on 鈥渦nderstanding who owns the data.鈥 (Hirschfeld Davis, 2/25)

Also at the summit, the National Institutes of Health announced its next steps in its goal toward getting聽1 million research patients聽by the end of 2019聽鈥

The National Institutes of Health said on Thursday it hopes to enroll 79,000 volunteers by the end of 2016 toward what it hopes will be a one-million-patient 鈥減recision medicine鈥 study of the genetic causes of diseases. The NIH and the White House launched the $215 million precision medicine initiative a year ago as an effort to find genetic patterns of cancer and other diseases. The centerpiece of that initiative is the one-million person cohort by the end of 2019, and the NIH said it has awarded an initial grant to Vanderbilt University to explore the best way to recruit volunteers for the study. (Burton, 2/25)

鈥淔or most of history, medicine has been based on trying to identify what works for the average person. We鈥檙e all different. This one-size-fits-all approach is far from optimal,鈥 Dr. Francis Collins, NIH鈥檚 director, told reporters. The goal is to 鈥渆mpower any person, anywhere in the U.S., to raise their hand and volunteer to participate鈥 in what鈥檚 called the PMI Cohort Program, he said. NIH said is it providing funding to Vanderbilt University for a pilot project to learn how best to attract those volunteers, how to collect the data, and what findings about their own health participants want in return. Vanderbilt will work in collaboration with advisers from Verily, formerly Google Life Sciences. (Neergaard, 2/25)

This is part of the Morning Briefing, a summary of health policy coverage from major news organizations. Sign up for an email subscription.
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